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Welcome. These are letters to my unborn daughter, Lily Grace Smith. She has a rare chromosomal disorder called, Trisomy 18 or Edwards Syndrome, and is not expected to live through infancy. These letters are my attempt to communicate with her all the things a father wants his daughter to know. They represent the conversations and the advise that I want to share with her. Please feel free to read the letters and to comment. In return, I only ask that you make sure your children know how much you love them.

Letter to Lily 3/5/09

Dear Lily,

How are you little one? You gave mommy quite a scare the other night. She thought that you were on your way. You will come when it is time, we know that; but I want you to stay in there, safe and warm for as long as you can. Trust me, it is the safest place you will ever be. This world can be cruel, especially to those who are "different." You are fighting right now, and when you do come into this world, I will protect you. Just know that the longer you are with us, the more you will have to fight. I, and everyone who loves you, are in your corner. We will savagely defend you, but we can't protect you from every ugly thing. Some will think of you as less than they are. There are some pungent words -- retarded, defective, and others. They are like a hiss from a snake. Some will wonder why we ever let you come into this world. They will say, "How can you call that living?" To them, I will say, "Someone let you come into this world, and if you have that much hate in your heart, maybe I should be asking that person why they brought you into this world." Don't get down though. Most people in this world will love you. Know that we outweigh those who will turn away in disgust. Keep your focus on us. We will be sending love your way.

So, take your time. I can't remember what it was like in there, but I bet it's cozy and I know your mommy is taking great care of you. I make sure she eats her vegetables ;). I will see you in a few weeks. I can't wait to meet you, but don't hurry.

Love to the googolplex power,

Daddy
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      • Video of Lily's Ultrasound
      • Letter to Lily 3/24/09
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      • Letter to Lily 3/5/09
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