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Welcome. These are letters to my unborn daughter, Lily Grace Smith. She has a rare chromosomal disorder called, Trisomy 18 or Edwards Syndrome, and is not expected to live through infancy. These letters are my attempt to communicate with her all the things a father wants his daughter to know. They represent the conversations and the advise that I want to share with her. Please feel free to read the letters and to comment. In return, I only ask that you make sure your children know how much you love them.

Letter to Lily 4/15/09

Dear Lily,

I listened to a song today. It is one that I have listened to a hundred times. Most of the time, I hear it as a battle cry for my own ambition. You see I have always felt a strong pull to be someone -- to do something special, meaningful. The song is entitled, "I Dare You To Move" by Switchfoot. I like them because they are a Christian band, but they are not in your face with it. I like the subtler approach. Anyway, while I was listening to it today, it struck me that the first verse seemed to be speaking to a newborn baby. The lyrics say, "Welcome to the planet/Welcome to existence/Everyone's here/Everyone's here/Everybody's watching you now/Everybody waits for you now/What happens next?/What happens next?/I dare you to move."

I have spent so many days and nights lifting you up in my thoughts. I have been pushing you to keep fighting. Well, I realized tonight that, like in the song, everybody 's watching you now. Everybody waits for you now. I found myself speaking to you as I sang the words, "I dare you to move." I dare you to prove everybody wrong. "I dare you to lift yourself up off the floor." You can do it. I am waiting here to catch you. You have come SO far. This journey that your mommy, our friends and family, you, and I have taken together has seemed so long. It has been heartbreaking at times. It has been heart-filling at times. I can't say that I would have asked for this trial, but I can say in looking back that I am better for it. The funny thing is (people say "funny" when they really mean interesting, scary, wonderful, etc.) that I have this feeling that our journey isn't nearing it's end. If that is so, just think of all the learning I still have to do. Come with me on that journey. You can teach me and I will teach you. I dare you to move like today never happened before.

Love as big as the moon is high,

Daddy-
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  • ▼  2009 (23)
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      • Letter to Lily 4/28/09
      • Letter to Lily 4/27/09
      • Letter to Lily 4/25/09
      • Letter to Lily 4/21/09
      • Letter to Lily 4/17/09
      • Letter to Lily 4/15/09
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      • Letter to Lily 4/2/09
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